Title: Urgent Call to Action for Proper Support to Vulnerable Children
Across the Country, Vulnerable Children are Being Let Down by the System
Sir David Davis’ granddaughter Chloe is suffering from an extremely rare genetic condition called SYNGAP1 Syndrome. This condition has left her non-verbal, experiencing numerous seizures every day, and grappling with a range of distressing symptoms. Chloe’s journey toward a diagnosis was long and challenging, but ultimately revealed a single error in her DNA as the cause of her health struggles.
Lack of Resources Impacts Chloe’s Education and Well-being
Chloe, a joyful and loving child, requires significant support to navigate through life with her condition. Her mother, Sarah, works tirelessly to care for her while dealing with a lack of resources in their area. Due to this deficit, Chloe missed a substantial amount of schooling during the pandemic, creating significant disruptions in her education and routine.
Inadequate Funding for Special Educational Needs and Disabilities Services
The epidemic of underfunding in Special Educational Needs and Disabilities (SEND) services is not unique to Chloe’s case. Many children across the UK are experiencing similar issues due to insufficient resources and support. The growing demand for these services, coupled with a deficit in funding, has created a crisis that urgently needs to be addressed.
Call for Action and Increased Funding to Safeguard Vulnerable Children
As the nation grapples with the aftermath of the pandemic, the need for increased funding for SEND services becomes even more critical. A comprehensive approach to supporting vulnerable children must be a top priority for policymakers and decision-makers. The time to act is now to ensure that all children, including those with special needs, receive the care and resources they deserve. Let’s join hands in advocating for proper support for our most vulnerable.